Our sweet little Indy Rayena Thurm was born June 12, 2016 and lived a beautiful 21 hours and 36 minutes. She was born with HLHS, and nothing else; no chromosome or other genetic problems. We made the confident decision to parent her by letting her live her life naturally, without surgical intervention; we chose comfort care for her upon her birth. Her entire life was filled with so much love and All She Knew Was Love! To this date, we have absolutely no regrets in how we chose to parent her! To find out a little more of our story click on Meet Indy.
My hope for this website to provide hope to other families who are faced with a HLHS diagnosis for their unborn baby. There is no right or wrong decision, and each family must make the choice they feel is best for them. The one thing we all have in common is that we love our babies with the utmost love a parent can have; and our decisions are made out of the purest love for our child. My hope is to spread awareness that comfort care is an option and should be an option for HLHS babies.